3年筛查69万中四生 · 每20人有1人是地贫携带者

卫生部长阿汉峇峇指出,2016至2018年期间,在每20名接受筛查的中四学生中,就有约5%或一人是地中海贫血症基因携带者。

他指出,在上述期间,有68万9460名中四学生接受筛查,其中的3万1716人被鉴定为地贫基因携带者。

他今日为2021年地贫醒觉运动“NowyouSEEme”主持线上推介时说,截至2019年11月28日,大马地贫注册署已录得8681名地贫患者,其中7240人仍存活及正接受治疗,另有130人在接受干细胞治疗后痊愈。

“防范地贫是非常重要的任务,以确保地贫病患的人数减少,因为治疗此病症的费用非常之高。”

教育近亲筛检的重要性

阿汉峇峇解释,地贫患者无法产生正常的红血球,导致他们的红血球功能受到影响,以及患者需要定期输血。

“地贫患者如果不遵守治疗方案和没有专科医生监督,可能会出现并发症和医疗并发症。”

他劝请,地贫患者教育近亲有关接受筛检的重要性,以照顾下一代。

他说,地贫是遗传疾病,患者必需秉持更开放的态度,尤其是要对配偶坦诚。

需给家长更广泛的宣导

一同出席推介礼的教育部副部长慕斯立敏( Muslimin Yahaya)指出,估计今年将有37万3650名中四学生参与地贫筛查计划。

“虽然我们已从2016年开始展开这项学生筛查计划,并进行各项推广如地贫海报绘画比赛,但仍有必要给家长更广泛的宣导,以提升他们意识,以允许他们的孩子接受筛查。”

教育部学校卫生组高级助理主任东依斯迈在推介礼后的记者会上指出,选择中四学生的原因是,他们没有大型考试的压力,以及从病理学的角度而言,16岁以上的个人血液参数,与成年人无异。

“地贫可发生在任何年龄层,但为达到更有效的筛查目标,我们选择提早筛查,也就是在他们长大成人和结婚之前。”

不过,他说,地贫筛查并不强制所有学生参与,因为它是属于遗传疾病,以及对于18岁以下的个人,必须得到家长或监护人的首肯。


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